On Monday, Abby and I got to go on a little Daddy-Daughter date! It was a great time for just the two of us. I had a doctors appointment in the morning and we went there and Abby got to see everyone at Dr. Crist's office. We then went to the mall and Abby said she wanted a cookie, so we got her the biggest chocolate chip cookie they had! We then stopped by the Station and visited with everyone there. We then called "momma and sissies" and had them come in and meet us to go watch Cars 2. That was a great morning! At the movies, we ran into some our friends from church and watched the movie with them, and it was nice letting the kids hang out together. That was a good day, and Abby was alert for most of it. We do seem to have some bad days popping up too though.
Abby is, unfortunately, seeming to slip a little further away every day. She is very tired all of the time, sleeping most of the day, and her appetite has decreased dramatically. The other day, Maegan told me that the only things that Abby had to eat that day was a couple bites of yogurt, a few goldfish crackers and a couple pieces of ham for dinner. Using the bathroom is starting to become an issue again as well. Over the past week, Abby will tell us that she needs to go potty, and we'll carry her in there, and she won't be able to go. She gets very frustrated by this, as anyone else would too, I think that makes her tense up which makes it harder to go. Also not helping the case, it is very hard for her to balance herself so she is constantly moving trying to keep balanced, which only makes things harder. I either have to hold her under her arms to help her balance, or I stand next to her and let her lean against me.
Yesterday, she had a couple minor accidents. We think that it happens because she finally gets relaxed on the couch and then realizes she has to go potty and gets a little pee-pee in her panties. Maegan asked her if she would want some pull-ups to put on, and she said that she wanted those so she doesn't have an accident. We let her make that choice, and as of this morning, as best as I could tell, she was dry and she went potty at least once every hour last night. Needless to say, Maegan and I did not sleep well last night, but I was happy that Abby is still wanting to make the effort to get to the bathroom, even though she doesn't go every time.
On a sad note, I spoke with my Assistant Chief, about using the Department's Honor Guard for Abby's funeral, and he said that they would be happy to do that for her. That will be a nice touch.
We'd like to invite you to read Abby's Journey from the beginning. We hope that her story may help a family who is facing the same battle with DIPG. We are praying for a cure and are praying for every child who is diagnosed with cancer.
This is Abby's story.
This is Abby's story.
2 Timothy 1:7
For God hath not given us the spirit of fear; but of power, and of love, and of a sound mind.