Abby's Journey

We'd like to invite you to read Abby's Journey from the beginning. We hope that her story may help a family who is facing the same battle with DIPG. We are praying for a cure and are praying for every child who is diagnosed with cancer.

This is Abby's story.

Wednesday, August 18, 2010

Mood Swings and Wheelchairs

We could definitely see that Abby is taking her steroids.  Talk about a moody little girl.  I wasn't expecting a teenager at age four.  We had a good day in the morning, but then after Mary-Beth returned home from school and we gave her some birthday presents, the attitude began.  She started screaming that she wanted her present, and then when we told her that we were celebrating Mary-Beth's birthday and it was Mary-Beth's day for presents, she stormed off and slammed the door yelling that she wants a present.  So we let her "vent" for a while, but when she continued slamming the bedroom door, Daddy had to put on his big boy voice and stop it.  She didn't like it but eventually stopped and came out and pouted while Mary-Beth finished opening her presents.  She started to get better when the wheelchair delivery guy showed up and brought her temporary chair in.  I'll put a picture of it up tomorrow, she loves it!  She's really excited that hers will be pink!  Then, the drama continued....

We left to take Mary-Beth out for her birthday dinner as soon as the wheelchair guy finished.  Abby got upset with me AGAIN because we didn't take her chair with us. The thing with this chair is that its about 50-65 pounds, the entire chair can recline back, and it has the extra wheels on the back so it can't flip backwards. So for now, getting that sucker in and out of the house is gonna be a bear, especially when you put a 58 pound little girl in it!  She didn't realize that I left it at home until we got to Olive Garden and we handed her the walker.  All I heard for the next 15 minutes was a pouty voice saying "I want my chair".  Then the salad showed up and she got into a better mood!

Mary-Beth's birthday dinner was very nice.  She got a nice new outfit as well as a digital camera from Grandma because she loves to take pictures, and she's pretty good at it too!  

Tomorrow morning we are doing an interview with Holly Brantley of KFVS-12 at 9:30 am.  After that, we are heading up to St. Louis to check in with and fill out some more papers for Abby's chemo.  They are then going to take some blood from Abby from the broviak tube which means No Pokes!  We are then going to my parent's house and will then take Mary-Beth out with my parents for her birthday dinner (part two!) and our presents for her.  Then Friday morning at around 7:30 am we will take Abby in for her first treatment.  

Some of my prayers were answered today by some of my friends here in Oak Ridge.  I had been stressing about getting a wheelchair ramp in so that we can get Abby in and out of the house without having to dead lift her every time.  Some of the dads from Mary-Beth and Abby's school said that they want to build her a wheelchair ramp this weekend for us.  What a blessing friends are!  I thank God everyday for our friends and family who continually find ways to surprise us with their generosity and love.  It makes me speechless and amazed.

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2 Timothy 1:7

For God hath not given us the spirit of fear; but of power, and of love, and of a sound mind.