Abby's Journey

We'd like to invite you to read Abby's Journey from the beginning. We hope that her story may help a family who is facing the same battle with DIPG. We are praying for a cure and are praying for every child who is diagnosed with cancer.

This is Abby's story.

Saturday, August 14, 2010

Home at Last!

After what seemed like an eternity yesterday, we were finally discharged from the hospital!!  We thought that we would be done by late morning, early afternoon at the latest, but we did not leave there until around 7:30pm!  We enjoyed the hospital staff and the good care they provided for Abigail, but it just seemed like they did not want us to leave!

We are finally home and are enjoying our first day back.  I have been trying to convince Mary-Beth and Emily that they need to keep their toys picked up so Abby does not have any obstacles to try to walk past. Mary-Beth is doing pretty good with it, but Emily hasn't grasped the concept.  We tried to sneak Abby's medication in with her apple juice this morning, but she could taste it and we had to bribe her with some candy to get her to drink it.  I believe we are going to just have to make her drink it.  Luckily i'ts not much, so it should not be too bad (I hope).
We are trying to figure out the new sleeping arrangements for the girls.  Abby was on the top bunk with Mary-Beth on the bottom, and Emily in her toddler bed in her room.  Since Abby can't get up or down the ladder anymore, that has to change.  Plus, we don't want Abby to have to walk across the house to get to our room if she needs anything during the night.  So I think that we may use an air mattress in our room for Abby until a better arrangement presents itself.

Something else I also thought of having to change, was possibly having to put in a ramp to the back deck for Abby.  She can walk decent now as long as someone is holding her hand to support her, I'm just worried about during her treatment and we come home and she is exhausted.  They are going to have Abby meet with a therapist and she will probably get a walker and wheelchair to move around in.  I just want to make sure she can get around when she wants to without restrictions.

I am very proud of Mary-Beth for being such a good helper.  This morning, Abby wanted to go back to the bedroom and I was in the kitchen and Maegan was in the dining room, and I look over and Mary-Beth is walking Abby hand-in-hand towards the bedroom making sure that she was walking good and that she could walk.  It made me so happy that she was trying to make Abby feel good.  She had always been so adverse to holding hands with Abby before, and now to see her make the effort is wonderful!


Jeremy and Raelenna Ferguson said...

I heard your story on KHIS, my heart breaks for you and your family. But I know God is bigger than any of this. I pray for His peace, love, comfort and full healing for you and your family.. especially your precious Abby.

Steve and Ruth said...

Praying for you all that the SAHA will give positive results for you. If it does, it will bring hope to so many other families going through this as well. Praying for joy and laughter every day for you!

2 Timothy 1:7

For God hath not given us the spirit of fear; but of power, and of love, and of a sound mind.