As of right now, Abby only has 11 more radiation treatments! She has really settled into a good routine. She insists on waking up with me at 5:30 am to get ready to go to the hospital. Then we go to the living room where Sponge Bob entertains Abby and usually Emily and Grandpa by this time as well. We then get dressed and then give Grandma, Grandpa, and Emily loves, and then Daddy gets to carry her out to the van. On the ride to the hospital, Abby has been insistent that she watches Alice In Wonderland. Thankfully, yesterday we convinced her that it was time for a new movie in the car and we now watch/listen to the Fox & the Hound. After eight back to back to back viewings of the movie, and Maegan and I know almost all the words and songs by heart.
After treatment and a short nap, Abby, Emily, Grandpa and I took a walk down the street to the pond where a bunch of geese like to hang out. And yes, Abigail walked the entire way down there, which is about 1/4 of a mile away! She was pretty tired by the time we got home, but she walked down there. We then feed the geese and there were literally around 100 geese fighting for Abby and Emily's attention. They thought it was pretty cool. After the bread was all gone we started back home, Abigail on my shoulders, and Emily being carried by Grandpa. We had a good time and then showed Mommy and Grandma the pictures and little video that I took on my phone. They were impressed with our 'Goose Whispering' skills.
We have all noticed how much progress Abby has been making and just how well she is doing! Her speech continues to improve, she was chasing Emily around the house trying to tickle her, and going to the bathroom is no longer a 20 minute ordeal. We appreciate seeing all of these little miracles.
After treatment and a blood draw this morning we went to the house. As we got closer we noticed that Abby as breathing quickly and loud. When we got to the house she continued to breath, almost like a panting. Maegan called the doctor and told them what was going on and they said that as long as she doesn't start complaining of not being able to breath, then we should be okay. Still, it is not a fun thing and its a little scary. They said that if her hemoglobin levels have dropped, which transports oxygen throughout the body, that may be why she is panting. Hopefully it will get better.
Abby also is insisting on eating Chinese food again tonight. That's my girl!
We'd like to invite you to read Abby's Journey from the beginning. We hope that her story may help a family who is facing the same battle with DIPG. We are praying for a cure and are praying for every child who is diagnosed with cancer.
This is Abby's story.
This is Abby's story.
2 Timothy 1:7
For God hath not given us the spirit of fear; but of power, and of love, and of a sound mind.