Abby's Journey

We'd like to invite you to read Abby's Journey from the beginning. We hope that her story may help a family who is facing the same battle with DIPG. We are praying for a cure and are praying for every child who is diagnosed with cancer.

This is Abby's story.

Sunday, October 17, 2010

Sunday Sunday

Abby continues to do well! Today, we got up and ready for church, and Abby was initially upset because she “outgrew” one of her favorite dresses. She could get it on but we couldn’t get it zipped up. So Maegan appeased her by telling her that she will go out tomorrow and find her a beautiful fancy church dress. We all had an enjoyable time at church today, and Abby was even content wearing her mask throughout the meetings. We were afraid that she would become self-conscious about it, but she knows that she needs to wear it so that she doesn’t get sick. Maegan also went into her class room and used a disinfecting wipe on her chair just in an attempt to minimize any germs around her.
After church, we went out to Lake Wappapello to visit Maegan’s parents who are out celebrating Grandma Mary’s birthday which is tomorrow. We had a good visit and enjoyed being out in the wilderness and spending some quiet time with Grandma and Grandpa. The drive home was not so quiet! Emily was not wanting to sit in her car seat and decided that her form of protest would be screaming and crying, and the putting her fingers in her mouth as she screams and cries making herself gag. Finally, I pulled over and asked her if she wanted to get out of the car, and she said no and that she would be quiet. She finally did thankfully!
When we got home, we had a message from Dr. Lili wanting us to call her cell phone. Panic set in, but Maegan called her and she just wanted us to keep a daily check on Abby’s blood pressure because it has been high recently. I believe that on Friday it was roughly 130/80 –ish. Dr. Lili just wants us to monitor it and if it is above 120 she wants us to call her and let her know. So everyone please keep her in your prayers that her blood pressure stabilizes and stays good. We know that prayers really help!! We have had many examples of this during this ordeal, the most recent being her blood draw on Thursday. The nurses were not able to draw blood from Abby on Thursday and were afraid that there may be a kink in the tube or a clog. So after making and receiving many prayers, the nurses had no problems drawing her blood on Friday at the hospital. We are huge believers in the power of prayer!! I will let you know how things go throughout the week.

No comments:

2 Timothy 1:7

For God hath not given us the spirit of fear; but of power, and of love, and of a sound mind.